Sunday, November 2, 2008

More updates on Dan...

It seems challenging to keep updating the blog when the progress is so slow with Dan's therapy. Many people who see him say that they think his speech has improved... that would be good. I am hoping that is the case, but it is hard to tell when you live with him everyday. It is like watching your kids grow... you don't really notice a change from day to day, but when you look back over a period of time, you can see the changes.

Dan continues to work on his improvement. We have applied for a Bioness device that can help stimulate his right arm. We are waiting to see if insurance approves this... it has been frustrating as my insurance quit paying for any therapy as they don't believe it is "medically necessary" for him to continue on in therapy. It is hard enough to stay motivated to work on therapy when the progress seems so slow.. but when you can't get the help of the insurance to back you, it becomes a situation that requires even more self motivation. Dan has been riding his bike down to Gold's gym and working out there...

He also went in for a brace evaluation - we are trying to get a leg brace that will work. Since going to China, he has been walking without the leg brace - and does ok if he goes really slow. But his right leg is still not stable, and so he has the potential to fall and thus we are looking for a brace that will work for him. We did have one made earlier in the year, but after use in therapy, it became apparent that it was not very functional for day to day use. The brace restricted him from bending his leg fully, and this made it hard for him to go from a sitting to standing position. He couldn't get the leg bent enough to get under him to lift him into a standing position. He also couldn't ride his bike due to the brace getting in the way... it seems like such a simple thing... get a brace to stabilize his knee hyperextension, but it becomes a very complicated, custom operation to get one that really works well. We are still working on it - we went back to the company that made him the best brace he has ever had. The orthotist there wears a brace himself, and so he seems a little more in tune with what is really needed to create a workable solution...

We are continuing to support Dan in his effort to make improvements. He is such a good guy, and if there is any chance of a better life for him, we want to help him realize it. We will keep you posted....

2 comments:

Anonymous said...

I'm glad to hear that there is a possibility of finding a brace that will work for you Dan! I wish you the best of luck and want you to know you are in my prayers daily. Keep up the good work Dan! We love you!!

Anonymous said...

Just want to say what a great blog you got here!
I've been around for quite a lot of time, but finally decided to show my appreciation of your work!

Thumbs up, and keep it going!

Cheers
Christian, iwspo.net